Friday, May 28, 2010

Competitiveness and a special needs child

The end of the school year has been hard on me. There is good news that my above average sized 6 year old will proceed to first grade, but it is with some concern and trepidation on Mommy's part. I cringe when I read updates on how fantastic friends kids did. I feel like a big pile of doggy doo when I feel that way, but it doesn't eliminate the fact that it is how I feel. Then I feel like imposter Mommy. You know, where you feel you are coming up with things wrong with your child to explain away what is really poor parenting. Sigh.

That brings me back to my personal flaws. I'm realizing just how competitive I am. Reading K's end of year scores and test results was humbling for me. I have been incredibly blessed throughout my personal academic career. Things came easy to me and I did well. Things are not coming easy to K and it is new territory. It terrifies me as a mother. I know how mean and cruel kids are as social skills didn't come easy to me growing up. I really fear for K and how his classmates will treat him. He doesn't understand the nuances of interpersonal relationships. APD is part of it. Some days I wonder if it is more. I've made a phone call to follow up on those moments of wonder.

His reading and language marks were average to a touch below average. His math skills were average to above average (not surprising for anyone who knows M and I). His handwriting was scored marginal, as in doesn't meet standards for grade. K has been working the Handwriting Without Tears (www.hwtears.com) program for well over a year, and well, K can't write his letters without tears. K's essential tremor contributes, but really, if he can't meet Kindergarten standards will he ever be able to meet them? Then again, does it really matter? Seriously, how many job interviews start with a handwriting sample? Thank goodness for the digital era.

I don't want life to be easy for my kids but I certainly don't wish that it be hard for them. K is going to have challenges all the way through school. I'm looking forward to his APD therapy program starting in July so we can see how that goes. I have also called for an appointment with a Psychologist who specializes in developmental disorders. I want to get the ball rolling to see if there is more going on than what we have figured out so far.

Seriously, the kid has seen almost every specialist in town: GI, Allergist, ENT (Ontolaryngology round one), Opthalmologist, Otolaryngology round two (APD diagnosis), Neurologist, Speech Therapist, Occupational Therapist, and now Child Psychologist. Please don't get me wrong, we are AMAZINGLY blessed parents. He is an amazing, beautiful, loving child. He just has some challenges and we are trying to figure out how to best help him.

As you would say in digital land I heart K! He is my big boy. I adore him and promise to him that I'll figure this out and try my best to make it easier for him.

6 comments:

  1. I really do not have much to say other than you are doing an amazing job. Your love for K will show through. I am sorry he will have it tougher in life than others. But he was given amazing parents who are doing everything in their power to help him.

    It dawned on me a few weeks ago that you never expect what your kids will bring you. I realized I signed Em up for pre-school at the same school Ross goes to and never once asked if they had ever had a child with epilepsy and what protocol they have in place if she has a seizure.

    They do keep us on our toes. :hug:

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  2. mega giant hugs L !!
    I hear you !
    One thing my friend said was that my job was to help R be the best R he can be( not to fix him )
    This has become my personal mantra

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  3. Thanks Joy and K. I appreciate the support. It really does take more than just the core family to raise our kids.

    K - I have that discussion with the OT regularly...that I want to help L be his best, whatever that might be.

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  4. Thank you for being so open to sharing your story to the world! I hope you will join our discussion on listenlovelearn.com or on our facebook site. We have had a wonderful discussion with parents who have children with APD. If you have the opportunity to read, "The Sound of Hope" I would love to hear what your thoughts are. The forward is written by Rosie O'Donnell, whose son is a client of the authors. You have so much knowledge to share with everyone. I look forward to seeing you on our site, and I will surely promote your blog through the twitter account so people can hear about it! Thank you again

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  5. Thank you for the kind words Lois. I've started reading "The Sound of Hope" on my Kindle. I'm several chapters in and enjoying it so far. Our diagnosis is pretty recent so reassurance that APD is 'real' is very cathartic right now.

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  6. HI Janmom! I came through from a link on Lois's blog. I wanted to invite you to be part of our web site Support for Special Needs. One of the dads on there just started a group for his daughter who has APD and I know he would LOVE to have you there because he has big plans for the group:
    http://supportforspecialneeds.com/2010/06/18/meet-community-member-ben-nice-guy-good-dad/
    I hope you will check us out! :)

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